The PURPLE Registry

The PURPLE Registry was established in 2016 by a team of clinicians and scientists led by Dr Belinda Lee at WEHI (Walter and Eliza Hall Institute of Medical Research) to accelerate research in pancreatic cancer and more efficiently translate research knowledge into practice.

Pioneering translational registry research in Australia. 

The PURPLE Registry collects longitudinal data through a large network of cancer centres across Australia, New Zealand and Singapore. 

Combining de-identified clinical and research data on a unique secure web-based data-sharing platform, the registry enables a diverse range of research activities. 

As a powerful and integrated research tool, the PURPLE Registry offers a richer understanding of changing patterns of care, including access to novel therapeutics and structures this into findable data. This allows multiple parallel analyses to the individual patient level.  

By following patients and collecting valuable clinical data along the entire care pathway, it is hoped we can identify better methods of diagnosing the disease at an earlier stage, understand differences between patient groups and provide appropriate treatments to improve pancreatic cancer survival.