The PURPLE Registry collects data about patients with pancreatic cancer.  

The data collected includes:

• symptoms experienced before diagnosis
• how the diagnosis was made
• the types of treatments offered and received
• routine care given to manage day to day living

The data is collected directly from a wide network of public and private cancer treatment centres by trained and certified medical specialists.  

Permission to collect the data in an ethical and secure way has been approved by the Melbourne Health Human Research Ethics Committee.